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Republican Scientific and Practical Conference «Role of Pediatrician in Management of Patients with Orphan Diseases»

Republican Scientific and Practical Conference «Role of Pediatrician in Management of Patients with Orphan Diseases»

2022-05-27 09:23:00

On the 27th of May 2022, there had been held Republican Scientific and Practical Conference «Role of Pediatrician in Management of Patients with Orphan Diseases» at BelMAPE. The purpose of this scientific and practical event was to summarize and present domestic and international experience in this area, to increase the awareness of medical specialists about rare (orphan) diseases in children, the possibilities of their timely diagnosis, treatment and prevention.

Republican Scientific and Practical Conference «Role of Pediatrician in Management of Patients with Orphan Diseases»

The conference was organized by the Department of Medical Care for Mothers and Children of the Ministry of Health of the Republic of Belarus, State Educational Establishment "Belarusian Medical Academy of Postgraduate Education" together with the State Institution "Republican Clinical Center for Palliative Care of Children" and the Public Association "Republican Society of Pediatricians".

First vice-rector of BelMAPE, Candidate of Medical Sciences, associate professor Andrei Platonov and Director of the Republican Clinical Center for Palliative Care of Children, chief visiting specialist of children’s palliative care of the Ministry of Health L. A. Bomberova addressed the conference participants with a welcoming speech on behalf of the organizing committee. The conference was moderated by head of the Department of Pediatrics of BelMAPE, head of the Republican Center for Pediatric Osteoporosis, Deputy Chairman of the Republican Society of Pediatricians  Alexei Pochkailo.

The work of the conference was organized in a hybrid format: trainees of the advanced training courses of the Academy, clinical residents and staff of the departments took part at the conference from the conference hall of the Academy; medical specialists from all regions of Belarus participated online at the conference, which allowed them to fully participate at the discussions of the reports.

The topics of the reports made during the conference covered a wide range of issues: diagnostics and treatment of orphan diseases in children, including rare diseases affecting the nervous system, hereditary metabolic diseases, genodermatosis, as well as organization of medical care for children with genetic pathology of skin and neuromuscular diseases, peculiarities of registration and medical use of orphan drugs in pediatric practice, principles of the psychosocial model for organizing assistance to families with children with special needs, key aspects of immunoprophylaxis of infectious diseases in children with orphan diseases. The conference program included presentations of clinical cases from practice on the subject of the conference, as well as information on modern medicines and baby food products used in pediatrics, presented by leading domestic manufacturers.

Leading specialists from BelMAPE, Belarusian State Medical University, Grodno State Medical University, Republican Scientific and Practical Center "Mother and Child", Republican Clinical Center for Palliative Care for Children, including heads of specialized republican centers and chief specialists of the Ministry of Health, took an active part at the scientific and practical conference as speakers according to the profile of the event.

Summing up the results of the conference, head of the Department of Pediatrics of BelMAPE Alexei Pochkailo, on behalf of the organizing committee, noted the relevance and practice orientation of the presented reports, expressed gratitude for the support in organizing it to the members of the organizing committee, for active and fruitful work - to all participants of the scientific event.

The video recording of the Republican Scientific and Practical Conference is available for review at the following link.

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